About Bens Friends and What We Do

Mission Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare …

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Biggest Challenges For Those Living With A Rare Disease

We asked you, the members of our  Ben’s Friends Communities, what they thought the biggest challenges are for those living with a rare disease. A quick survey in each of our support communities resulted some common themes, but also things that were unique to each community and to each person’s individual experiences. When analyzing the …

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