About Living With Rare Disease Support Community

LivingWithRareDisease.Org is a referal and support site for all of Bens Friends Communities. Our hope is that patients, caretakers, and family/friends effect by rare disease and searching for support and information will use our Community and Latest Topic Guide to locate one of our over 40 support communities to get and give support with others …

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About Bens Friends and What We Do

Mission Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare …

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Biggest Challenges For Those Living With A Rare Disease

We asked you, the members of our  Ben’s Friends Communities, what they thought the biggest challenges are for those living with a rare disease. A quick survey in each of our support communities resulted some common themes, but also things that were unique to each community and to each person’s individual experiences. When analyzing the …

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