The following New communities were started in 2018, many of which represent co-conditions that occur with Rare Diseases already supported by Ben’s Friends Patient communities and may be of interest to our existing members: https://www.livingwithchronicpelvicpain.org/ Chronic pelvic pain (CPP) is a disabling disease that causes distress as the quality of life of CPP patients is …Read more
Latest Discussions from our Rare disease community. need a group for your disease? Suggest it here.
Is there any new Dercum's Disease Info?
by @SuperSport Stephen on March 5, 2019 at 3:41 am
About the Navigating the NHS category
by @Modsupport Modsupport on November 16, 2018 at 4:48 pm
About the Rare Disease 101 category
by @Modsupport Modsupport on June 15, 2018 at 10:17 pm
Can you help me with
by @Modsupport Modsupport on June 11, 2017 at 7:02 pm
A holiday message from us at Ben's Friends
by @Modsupport Modsupport on December 25, 2016 at 2:28 am
LivingWithRareDisease.Org is a referal and support site for all of Bens Friends Communities. Our hope is that patients, caretakers, and family/friends effect by rare disease and searching for support and information will use our Community and Latest Topic Guide to locate one of our over 40 support communities to get and give support with others …Read more
Mission Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare …Read more