The following New communities were started in 2018, many of which represent co-conditions that occur with Rare Diseases already supported by Ben’s Friends Patient communities and may be of interest to our existing members: https://www.livingwithchronicpelvicpain.org/ Chronic pelvic pain (CPP) is a disabling disease that causes distress as the quality of life of CPP patients is …Read more
Latest Discussions from our Rare disease community. need a group for your disease? Suggest it here.
Is there any new Dercum's Disease Info?
by @SuperSport Stephen on March 5, 2019 at 3:41 am
About the Navigating the NHS category
by @Modsupport Modsupport on November 16, 2018 at 4:48 pm
About the Rare Disease 101 category
by @Modsupport Modsupport on June 15, 2018 at 10:17 pm
Can you help me with
by @Modsupport Modsupport on June 11, 2017 at 7:02 pm
A holiday message from us at Ben's Friends
by @Modsupport Modsupport on December 25, 2016 at 2:28 am
It’s okay to not have the perfect life, believe it or not, social media aside, no one has a life of perfection. It’s okay to not be okay and admit it. It’s okay to struggle and to be open with those who are close to you. By admitting that you are not okay, you are …Read more
LivingWithRareDisease.Org is a referal and support site for all of Bens Friends Communities. Our hope is that patients, caretakers, and family/friends effect by rare disease and searching for support and information will use our Community and Latest Topic Guide to locate one of our over 40 support communities to get and give support with others …Read more