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Latest Discussions from our Rare disease community. need a group for your disease? Suggest it here.

Recent Posts

Bens Friends 2018 Report

Featured1 month ago

The following New communities were started in 2018, many of which represent co-conditions that occur with Rare Diseases already supported by Ben’s Friends Patient communities and may be of interest to our existing members: https://www.livingwithchronicpelvicpain.org/   Chronic pelvic pain (CPP) is a disabling disease that causes distress as the quality of life of CPP patients is …

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About Living With Rare Disease Support Community

LivingWithRareDisease.Org is a referal and support site for all of Bens Friends Communities. Our hope is that patients, caretakers, and family/friends effect by rare disease and searching for support and information will use our Community and Latest Topic Guide to locate one of our over 40 support communities to get and give support with others …

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About Bens Friends and What We Do

Mission Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare …

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