Ten Ben’s Friends Members and Friends are traveling to Glacier National Park This August for five active days to prove rare Disease Can’t stop – us not on Land or on Water and to raise money to build ten new Ben’s Friends Communities. Day 1 & 2: Seven Members of our Team are backpacking from …Read more
Latest Discussions from our Rare disease community. need a group for your disease? Suggest it here.
IgG4-related disease (IgG4-RD) group urgently needed
by Sohailali on May 30, 2020 at 2:29 pm
Don’t Get Mad, Get Proactive: A Covid-19 Weapon for YOU
by Ben_Munoz on March 20, 2020 at 4:20 am
Is there any new Dercum's Disease Info?
by SuperSport on March 5, 2019 at 3:41 am
About the Navigating the NHS category
by Modsupport on November 16, 2018 at 4:48 pm
About the Rare Disease 101 category
by Modsupport on June 15, 2018 at 10:17 pm
According to a New York Times article last month, virtual reality is being used as therapy for pain. Virtual reality is more than a distraction, researchers say. It’s more like a brain hack that occupies the brain so fully that it has no room to process pain sensations at the same time. Author Jane E. …Read more
It’s okay to not have the perfect life, believe it or not, social media aside, no one has a life of perfection. It’s okay to not be okay and admit it. It’s okay to struggle and to be open with those who are close to you. By admitting that you are not okay, you are …Read more