Ten Ben’s Friends Members and Friends are traveling to Glacier National Park This August for five active days to prove rare Disease Can’t stop – us not on Land or on Water and to raise money to build ten new Ben’s Friends Communities. Day 1 & 2: Seven Members of our Team are backpacking from …Read more
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Is there any new Dercum's Disease Info?
by @SuperSport Stephen on March 5, 2019 at 3:41 am
About the Navigating the NHS category
by @Modsupport Modsupport on November 16, 2018 at 4:48 pm
About the Rare Disease 101 category
by @Modsupport Modsupport on June 15, 2018 at 10:17 pm
Can you help me with
by @Modsupport Modsupport on June 11, 2017 at 7:02 pm
A holiday message from us at Ben's Friends
by @Modsupport Modsupport on December 25, 2016 at 2:28 am
According to a New York Times article last month, virtual reality is being used as therapy for pain. Virtual reality is more than a distraction, researchers say. It’s more like a brain hack that occupies the brain so fully that it has no room to process pain sensations at the same time. Author Jane E. …Read more
It’s okay to not have the perfect life, believe it or not, social media aside, no one has a life of perfection. It’s okay to not be okay and admit it. It’s okay to struggle and to be open with those who are close to you. By admitting that you are not okay, you are …Read more